This page lists a selection of reports related to the release of dementia and caregiving related reports and policy discussions, mainly from India, and also some major reports from outside India
- The Dementia India Report 2010
- Studies related to dementia prevalence and care interventions in India
A collection of links to online abstracts/ papers. - Important, recent reports from other countries/ world-wide
The Dementia India Report 2010
The Dementia India Report 2010 was released on September 21, 2010, World Alzheimer’s Day, and can be downloaded from the ARDSI site. The links for the downloads are here: Executive summary and Full report.
Highlights of the report are discussed on this site on the page Dementia and caregiving in India.
The release of the report received wide coverage in media. The Times of India, in its September 22, 2010 issue, in its article titled More Indian women suffer from dementia than men, says report gave highlights of the report and quoted Dr K Jacob Roy, chairman of Alzheimer’s and Related Disorders Society of India (ARDSI), as saying:
“Most cases go undiagnosed as people assume that it is just a normal ageing problem. In cases where the diagnosis is made, it is likely to be in moderately advanced stage,” he explained.
India Today discussed the report and gave its interview with Dr. Roy in its article titled Dementia alarm rings in country An excerpt from the article:
“In popular perception, dementia is still something associated with the West. Family members of those affected are not aware of it and there is stigma attached to it. Even physicians do not take early signs seriously,” said K. Jacob Roy, chairman, ARDSI.
The Hindu labelled the report as “timely” in its op-ed Dementia: a looming threat on September 29, 2010. To quote the op-ed:
With the exponential increase in the population of the elderly (60+ years) in India, an estimated 100 million today, expected to rise 198 million in 2030 and 326 million in 2050, dementia poses a looming public health challenge, the enormity of which cannot be underscored. The report thus addresses a felt need among professionals, policy makers, dementia sufferers and their families.
[Also read our page discussing dementia and caregiving status in India ]
For translations of the report:
- Gujarati: Contact Prof Sunita Jolly, sunitarj@yahoo.com
- Kannada: Contact Dr. Girish Rao, NIMHANS, girishnrao@yahoo.com
Studies related to dementia prevalence and care interventions in India
- Dementia mortality: Estimates of survival after the onset of dementia range from 4 to 12 years, Dr. Ravi Samuel, Indian J Psychiatry 2011;53:178-9
- Risk factors of dementia in North India: a case-control study, Tripathi M, Vibha D, Gupta P, Bhatia R, Padma Srivastava MV, Vivekanandhan S, Bhushan Singh M, Prasad K, Dergalust S, Mendez MF; Aging Ment Health. 2011 Jun 30
- Group intervention for carers of geriatric patients: experiences from a clinic in India, J. Henry, A. Jagannathan, K. Bhavana, B. Thomas, S. Bharath,M. Varghese, O. P. Jhirwal and P. T. Sivakumar; International Psychiatry, Volume 7 Number 2 April 2010
- Dementia care in developing countries: The road ahead by K S Shaji; Indian J Psychiatry 2009;51:5-7
- Behavioral symptoms and caregiver burden in dementia, Shaji KS, George RK, Prince MJ, Jacob KS; Indian J Psychiatry 2009;51:45-9
- The 10/66 dementia research group – 10 years on Martin J Prince, Indian Journal of Psychiatry, 2009, Vol 51, Issue 5, pages 8-15
- Closing the treatment gap for dementia in India, Dias A, Dewey ME, D’Souza J, Dhume R, Motghare DD, Shaji KS, Menon R, Prince M, Patel V., 2008 Jun 4; 3(6):e2333. Epub 2008 Jun 4.;53:178-9
- The Effectiveness of a Home Care Program for Supporting Caregivers of Persons with Dementia in Developing Countries: A Randomised Controlled Trial from Goa, India by Dias A, Dewey ME, D’Souza J, Dhume R, Motghare DD, et al. (2008) PLoS ONE 3(6): e2333. doi:10.1371/journal.pone.0002333s
- Usefulness of the Rowland Universal Dementia Assessment Scale in South India, T Iype, B K Ajitha, P Antony, N B Ajeeth, S Job, K S Shaji; J Neurol Neurosurg Psychiatry 2006;77:513-514 doi:10.1136/jnnp.2005.069005
- Global prevalence of dementia: a Delphi consensus study by Cleusa P Ferri, Prof Martin Prince, Prof Carol Brayne, and others; The Lancet, Volume 366, Issue 9503, Pages 2112 – 2117, 17 December 2005
- The impact associated with caring for a person with dementia: a report from the 10/66 Dementia Research Group’s Indian network by Amit Dias, Ravi Samuel, Vikram Patel, Martin Prince, R. Parameshwaran and E. S. Krishnamoorthy, Int J Geriatr Psychiatry 2004; 19: 182–184
- Care arrangements for people with dementia in developing countries by 10/66 Dementia Research Group, Int J Geriatr Psychiatry 2004; 19: 170–177.
- Sensitivity and Specificity of Cognitive and Functional Screening Instruments for Dementia: The Indo-U.S. Dementia Epidemiology Study by Rajesh Pandav, Gerda Fillenbaum, Graham Ratcliff D, Hiroko Dodge, Mary Ganguli MD; Journal of the American Geriatrics Society, Volume 50, Issue 3, pages 554–561, March 2002
- Revealing a hidden problem. An evaluation of a community dementia case-finding program from the Indian 10/66 dementia research network by Shaji, K. S., Arun Kishore, N. R., Lal, K. P. and Prince, M. (2002), International Journal of Geriatric Psychiatry, 17: 222–225. doi: 10.1002/gps.553
- Caregivers of people with Alzheimer’s disease: a qualitative study from the Indian 10/66 Dementia Research Network by Shaji, K. S., Smitha, K., Lal, K. P. and Prince, M. J., International Journal of Geriatric Psychiatry, 18: 1–6. doi: 10.1002/gps.649
Important, recent reports from other countries/ world-wide
World Alzheimer’s Day 2011
The theme for the 2011 World Alzheimer’s Day (September 21, 2011) is “Faces of dementia“. Read about the theme here.
World Alzheimer Report 2011
The World Alzheimer Report 2011: Benefits of early diagnosis and prevention shows that there are interventions that are effective in the early stages of dementia, some of which may be more effective when started earlier, and that there is a strong economic argument in favor of earlier diagnosis and timely intervention. The key findings can be read at World Alzheimer Report 2011; the page also offers download links for the executive summary and the full report.
2011 Alzheimer’s Disease Facts and Figures (USA)
The 2011 Alzheimer’s Disease Facts and Figures, published by the Alzheimer’s Association (USA), is available for download here. It includes the burden of Alzheimer’s and dementia on individuals, caregivers, government, and the nation’s healthcare system, and discusses the emotional and physical impact of dementia on unpaid caregivers.
New Diagnostic Criteria and Guidelines for Alzheimer’s Disease
In April 2011, new diagnostic criteria and guidelines for AD were released (27 years after the last release of such guidelines). Read this report on the release (the page includes an FAQ on the new guidelines, and also download links for the guidelines). These revised guidelines recognize three stages of AD, and propose biomarkers for preclinical Alzheimer’s Disease, Mild Cognitive Impairement (MCI), and Alzheimer’s Disease. Diagnostic criteria are provided for AD. All-cause dementia is also defined (not just AD).
March 2011 Global Perspective
The March 2011 Global Perspective issue, published by Alzheimer Disease International, includes recognition for people with dementia, focus on the arts and dementia, and an overview of the recent National Institutes of Health prevention review. Updates on work being done for dementia are available from many countries. It is available for download here .
World Alzheimer Report 2010
The World Alzheimer report 2010, published by Alzheimer Disease International, is available for download here. It provides a comprehensive global picture of the economic impact of Alzheimer’s disease and dementia, and includes estimates (worldwide, and for various regions) of the worldwide cost of dementia, including direct medical costs, direct non-medical costs and costs of informal (family) care. Policy recommendations are included.
Nun’s Study
The Nun Study is a longitudinal study of aging and Alzheimer’s disease funded by the National Institute on Aging. Results from this study are considered very important in understanding how Alzheimer’s develops and grows, and how various persons show the symptoms. Read about the study here: The Nun Study
