This page attempts to provide a consolidated list of dementia caregiver resources in India. In case you know of any other resource, or of any error on this page, please let us know by contacting us, or add a comment below. [read disclaimer]
Information specific to various cities/ states is available on the city-wise/ region-wise resource page here. [Click here for informational websites on dementia / caregiving]
On this page:
- ARDSI (Alzheimer’s and Related Disorders Society of India)
- ARDSI Chapters in various cities of India
- Dignity Foundation
- Helpage India
- Portal for old age solutions
- Dementia Day Care and Respite care
- Dementia Helplines
- Elder Helplines
- Helplines when distressed/ depressed
- Palliative care resources
- Other India-based resources, blogs and communities
- Dementia Information in Bengali, Gujarati, Hindi, Malayalam, Punjabi, Tamil, Telugu, Urdu
ARDSI (Alzheimer’s and Related Disorders Society of India) is one of the main resources for dementia caregivers in India. Their website is here. (The older website, http://www.alzheimer.org.in , is not kept updated and information there is obsolete; please use the new website instead).
ARDSI’s activities are devoted exclusively to help dementia patients and their families. They are involved in dementia and caregiving awareness activities. developing services, training family members and professionals, and undertaking research. They run several helplines to provide information on Alzheimer’s and caregiving. They also provide information for major research studies currently underway on dementia, and they released The Dementia India report 2010 in September 2010.
ARDSI also holds annual conferences on dementia. The last few conferences have been held in Bangalore (2008), Kolkata (2009), Delhi (2010), Pune (2011), Chennai (2012), and Guwahati (2013).
ARDSI has chapters in a number of cities. Information related to the various ARDSI chapters can be found in the respective city-wise/ region-wise dementia resources pages. Currently (as of December 2013), the ARDSI site states that the Administrative office is at Kunnamkulam (Kerala), the national office is at Delhi, and the chapters listed are given below. However please keep in mind that you may get more up-to-date information by calling up the ARDSI National Helpline.
- Bangalore (Bengaluru)
- Calicut (Kozhikode)
- Cochin (Kochi)
- Coimbatore (this chapter may no longer be active)
- Greater Mumbai
- Kolkata (Calcutta)
- Pune (this chapter may no longer be active)
- Trivandrum (Thiruvananthapuram)
Of these, the most recent are the Mysore and Guwahati chapters. Also, please note that information received suggests that the Pune chapter and the Coimbatore chapter are no longer active and are not responding to queries. Information on all chapters can be seen on the relevant pages: (city-wise/ region-wise dementia resources pages).
No details are available for some earlier ARDSI chapters, which are probably not active as chapters now and are not listed on the ARDSI site (ARDSI Jaipur Chapter and ARDSI Lucknow chapter). More ARDSI chapters are proposed (such as Baroda, Chandigarh, Ludhiana, Nagpur, Puducherry, Shimla, Srinagar, Varanasi.
Most of the chapters provide a range of services, such as memory clinic, caregiver support groups, home visits for assessment, caregiver training for home carers and for professional carers, day care centres, counseling, and helplines. Periodically, they hold seminars and workshops, and publicise dementia through awareness programs, functions held to mark World Alzheimer’s Day, and other such events. Patients and caregivers can contact the relevant ARDSI chapter for information and support. Some of the ARDSI chapters (such as Bangalore, Delhi, Hyderabad, Mumbai, Calcutta) also maintain websites, though these may not always be up-to-date with events, activities, and services, so it is best to contact them to get the latest news.
Many of the ARDSI chapters are run in coordination with/ managed by well-known neurology/ psychiatric hospitals of the city, or by major elder care service organisations in the city. For example, ARDSI Bangalore is associated with Nightingales Medical Trust, Bangalore, and ARDSI Greater Mumbai is associated with Silver Innings, Mumbai.
Information related to the various ARDSI chapters can be found in the respective page of the city-wise/ region-wise dementia resources pages.
While Dignity Foundation works in the general area of senior care, it also provides dementia specific services, including Dementia Day Care centres in Mumbai and Chennai. Dignity has a presence in Mumbai, Pune, Chennai, Kolkata, and Bangalore for senior care and community. They have a Dignity Lifestyle at Neral, Maharashtra, with an assisted living facility. This used to accept dementia patients (current status on whether they accept dementia patients is unclear: query sent in July 2014).
Dignity also runs helplines to help elders, and provides a number of services for elders. Contact information for Dignity (Mumbai, Pune, Kolkata, Bangalore, Chennai) can be seen on the city/ region specific pages listed on our city-wise/ region-wise dementia resource pages.
Helpage India works in the area of elders, and focuses on fighting isolation, poverty, and neglect. Helpage supports many initiatives for elders, including dementia initiatives, including ARDSI. They also have projects on palliative care.The Helpage India website contains information on their projects and also useful downloads, such as old age home directories.
Helpage India has its head office in Delhi, national offices in Chennai and Kolkata, and over fifty branch offices all over India. The map showing various locations and the contact information of each (on rolling the mouse over) is available Contact us: Our Network. The site also has contact information.
Helpage also runs helplines in 23 cities (information as of October 2013). According to Helpage, “These Helplines are used to address problems of elders such as isolation, neglect, facilitate emergency responses, provide information on access to various elderly schemes and provides linkages with the government, police and referral rescue & relief services along with offering counseling services to help elderly in distress” . Check their site for the helpline numbers. As of October 2013, the cities listed on this page are: Ahemdabad, Bengaluru, Bhopal. Bhubaneswar, Chandigarh, Chennai, Cuddalore, Dehradun, Delhi, Guwahati, Hyderabad, Jaipur, Kochi, Kolkata, Lucknow, Mumbai, Panaji, Patna, Pondicherry, Shimla, Jammu, Vijaywada, and Eluru. Please check the page for the latest and correct information.
Old Age Solutions is a portal for Technology Solutions for the Elderly, an initiative of TIE (Technology Interventions for the Elderly) of the Department of Science and Technology, and created by AIIMS, Delhi. The portal provides comprehensive information related to health, nutritional requirements, entertainment, recreation, environment, networking and assistive devices for the ageing. [update April 2014: The website is currently "under maintenance". Information has been received that the project is currently suspended but may be resumed after some months. As of now, some information can be reached by going directly to inside pages like http://www.oldagesolutions.org/Recreation/RecreationMain.aspx and then using navigation links, but this is not dependable.]
The Dementia India Report 2010 mentions that there are 10 dementia day care centres in India and 6 residential care facilities, suitable for persons with dementia. (There may be other day care centres for the elderly that accept persons with dementia). Many of these day care and respite care centres are run by various ARDSI chapters or in association with them, or by organizations involved in senior care such as Dignity Foundation (Mumbai) and the Nightingales Medical Trust (Bangalore). The 6 residential care facilities mentioned in the report are tabulated below, with links to more details that can be seen at the individual city resource pages. Updates/ corrections are welcome. You can also check the city-wise/ region-wise pages for information on day care centres and on rehabilitation/ respite care/ assisted living facilities as per the information available with us.
|Harmony Home, Kottapadi, Kerala||See contact and other details at: Resources for dementia care: Kerala cities (section on Harmony Home Kottapadi)|
|Malabar Harmony Home, Calicut (Kozhikode), Kerala||See contact and other details at: Resources for dementia care: Kerala cities (Section on Malabar Harmony Home)|
|Snehasadanam, Trivandrum, Kerala||See contact and other details at: Resources for dementia care: Kerala cities (section on Snehasadanam)|
|Nightingales Centre for Ageing and Alzheimer’s, Bangalore, Karnataka||Contact: Resources for dementia care: Bangalore (section on NCAA)|
|Cochin Harmony Home, Cochin, Kerala||See contact and other details at: Resources for dementia care: Kerala cities (section on Cochin Harmony Home)|
|Dignity Lifestyle Home, Neral, Maharashtra||(This facility may no longer be accepting persons with dementia) See contact and other details at: Resources for dementia care: Mumbai (section on Dignity Neral)|
Since the publication of the Dementia India Report 2010 report, some day care centres have been added, and some announced. Some have closed down. Some residential facilities have also started accepting persons with dementia for short and long term stay, rehabilitation, assisted living, extended hospital care, etc., in cities such as Mumbai, Pune, and Delhi. Please check for the city you are interested in by clicking on the relevant link on the City-wise/ region-wise dementia care information page, for more information on available day care centres, respite care, and other facilities, as per the information available with us. Please send in information of any changes that you are aware of, so that the data can be updated. Please note that facilities keep getting opened and closed.
The dementia helpline numbers from various cities are listed here. They typically function on working days, working hours. Please note that data keeps changing and numbers may stop functioning/ change. Please send any updates you have on these helplines so that we can keep this data updated. Here’s the available data:
NATIONAL DEMENTIA HELPLINE: 04842808088 (Mon-Sat 10 AM-4 PM). E-mail: firstname.lastname@example.org
This helpline, inaugurated at 18th ARDSICON at Guwahati on 30th November, 2013, operates from Cochin and provides nation-wide support. It is managed by the ARDSI National Office. You can get information on dementia and care here, as well as information on dementia resources in India.
Other Kerala-based Dementia Helplines: +91 98461 98473, +91 98461 98786, +91 98461 98471 (managed by the ARDSI National Office)
Kolkata: (033-32214540)(managed by ARDSI Calcutta Chapter) (earlier number, 2405-4959, has been discontinued)
Bangalore: 9342730936 (managed by ARDSI Bangalore Chapter/ NMT)(as of September 2013, the other number 9342730959 is not working)
New Delhi: (011) 29994940, (011) 64533663 (managed by ARDSI Delhi Chapter)
Hyderabad: (040) 6610 3413 (managed by ARDSI Hyderabad Chapter)
Mumbai: 9029000091 (managed by Silver Innings)
Some cities also run Elders Helpline/ Senior Citizens’ Helpline, often a cooperation between some NGO working in the area of elder welfare, and the police department. These helplines can be used to report abuse of elders, or assist elders in various ways, as well as get information on legal and other issues that relate to elders. They may also provide information on day care facilities, respite care, home nursing facilities, services that provide attendants and nurses, and old age homes.
Helpage India runs helplines in several cities; check their site for the helpline numbers.
Also check the links on our city-wise/ region-wise dementia resource pages for elder helplines of the respective city pages. As of October 2013, cities listed here include: Ahmedabad, Bangalore,
Here are some resources (helplines/ email ids) of organizations that provide help to persons who may be depressed/ distressed. Of course, you should contact them when you feel overwhelmed, and not leave off the contacting till you are utterly desperate. Helplines are typically designed to ensure confidential and provide anonymity, but you can confirm this with them before talking.
iCall (TISS) is a nation-wide psychosocial helpline run by TISS (Tata Institute of Social Sciences) where trained counsellors provide information, emotional support and counseling to individuals in psychological distress. iCall functions 12 hours a day, 6 days a week, from 10 AM to 10 PM, Monday to Saturday. The phone number is (022)- 25563291, the email id is email@example.com. Read more their Facebook page.(Helpline mentioned in June 2013 newspaper report here). (information confirmed by them in October 2013)
Vandrevala Foundation Helpline is a 24 hour helpline by trained counsellors and psychiatrists helping callers with a wide range of problems, including depression, anxiety, and thoughts of suicide. These 24-hour helplines are in Mumbai, Surat, and Delhi, but the numbers can be accessed nationwide, and are 1860-266-2345 and 022-2570 6000. Some newspaper reports on their services are here, here, and here.(Helpline mentioned in June 2013 newspaper report here).
Hitguj (BMC) is Brihanmumbai Municipal Corporation’s recently launched mental health helpline which offers telephonic counselling to people on a range of mental health issues. The helpline is Mumbai-based. Most callers call for problems like depression, anxiety, relationship problems, stress and economic uncertainty. Hitguj can be reached at 022-2413-1212 and is supposed to be available 24×7. One newspaper report is here (news from June 2013).
Samaritans Helpline (their page on Facebook is here) has a helplines at (022)-6464 3267 and 022-6565 3267 which work every day from 3 PM to 9 PM. (One earlier number, 32473267, may no longer be working) Their email id is firstname.lastname@example.org. (Update: July 2014)).
Aasra has a 24×7 helpline at (022)-27546669 /7 They suggest using their email id, email@example.com, if the phone line is busy, but there may be a lag in email response. (information confirmed by them in October 2013)).
Sumaitri is a Delhi-based crisis intervention center for depression and support and uses trained counselors. You may contact them on phone or you can visit them. They have a helpline at (011)-23389090 and work Monday to Friday 2pm to 10pm and on Saturday and Sundays 10am to 10pm. The email id is firstname.lastname@example.org, (information confirmed by them in October 2013).
Lifeline Kolkata is Kolkata based. They have a helpline at (033) 2463 7401 / 7432 and their timings are 10:00 am to 6:00 pm from Monday to Saturday. The email id is email@example.com. (information confirmed by them in October 2013).
When patients approach end-of-life stages, caregivers may need to evaluate options and make decisions. Dementia patients do not always benefit from aggressive medical treatment and repeated hospital visits, and the trade-offs are difficult for lay persons to evaluate. A very valuable input at this stage is an understanding of palliative care issues as applicable to dementia. For links that discuss palliative care in the context of dementia, check the resources here.
Palliative care is relatively new in India, and most of the focus has been in cancer/ HIV, and most practitioners may not be experienced in dementia palliation. Some organizations that work in palliative care and also maintain resources/ directories for various states of India are: Indian Institute of Palliative Care, the Thrissur based organizations, Pain & Palliative Care Society, Thrissur (their directory is here), and Trivandrum-based Pallium India (their directory is here). The following may also be useful: Pain and Palliative Care Society, Medical College, Calicut (a WHO-designated “demonstration project”) and the associated Institute of Palliative Medicine
Various major hospitals and hospices also have palliative care specialists to help patients suffering from a range of diseases. As mentioned above, when looking for a palliative care specialist, please look for persons with training/ experience of helping persons with dementia.
In addition to the directories available at these sites above, our city-wise/ region-wise pages may include specific links for palliative care in the city.
One important resource is hospitals that have strong Neurology departments that provide timely diagnosis if consulted. For example, Bangalore has one of the best hospitals for mental health, NIMHANS, for medical input as well as input on caregiving, including counseling.
Some caregivers and volunteers have pages on dementia/ caregiving as part of their sites, or they blog about their experiences or provide a forum for sharing experiences. These may be specific to dementia caregiving, or about caregiving in general, or about issues faced by senior citizens. There are also some caregiver communities. Some links:
http://swapnawrites.wordpress.com Swapna Kishore is a caregiver-blogger who has been blogging about her caregiving experiences since July 2008. Her blog has over 100 entries on her experience of caregiving for her mother with dementia, and well as some of her experiences with other caregivers of dementia patients.
http://alzheimerdiseaseinindia.blogspot.com Hendi Lingiah, a psychologist who has been actively supporting caregivers shares news updates on dementia and caregiving activities in India through this blog.
Vision Age India and URCLINIC: Dr. Ravi Samuel, a trained cognitive behaviour therapist,provides Cognitive Rehabilitation for patients with brain damage and dementia and related disorders. Visit his sites, Vision Age India and URCLINIC; the sites contain information on dementia and tips for carers. A dementia booklet in English and in Tamil is available from Vision Age India, as is a Tamil information sheet on dementia.
http://groups.google.com/group/ardsi-hyd-public/about is a publicly visible group of ARDSI Hyderabad, where they discuss the activities of ARDSI Hyderabad as well as share information about dementia and caregiving
http://careforcarers.wordpress.com/ Set up by Ekta Hattangady, this site includes some interviews of caregivers and tips for caregivers
http://caregiverslinkonline.com This is a social venture working to support informal caregivers and families. They are not dementia-specific, and their current projects focus on mental health, but they may be useful to connect with other caregivers, concerned persons, services, and resources.
In case you are aware of any other dementia caregiving resources in India, or have updates on the above resources, please leave a comment below, or contact us with the information]
- Bengali: Several booklets on dementia from Alzheimer's Society (UK) (topics include understanding memory loss, diagnosis and assessment, communicating, dealing with aggressive behaviour, and handling legal and financial aspects). Bengali information booklet from Scotland: Dementia. Also, call/ email ARDSI Calcutta Chapter for availability of printed booklets on dementia/ care in Bengali. A new and comprehensive resource for dementia/ care information in Bengali is the website of Alzheimer's Association of Bangladesh. This website has several pages in Bengali that explain dementia as well as related caregiving aspects.
- Gujarati - Several booklets on dementia from Alzheimer's Society (UK) (topics include understanding memory loss, diagnosis and assessment, communicating, dealing with aggressive behaviour, and handling legal and financial aspects).
- Hindi - A full-fledged site with dementia and caregiving information in Hindi is available at Dementia Hindi. This site has over 40 detailed pages explaining dementia and how families can handle the caregiving, and the site also includes links to Hindi material available from other websites across the world and to available videos and other resources in Hindi. Several videos and downloads are also available. Queries to this site can be sent in Hindi or English and will be answered in the same language. Hindi videos on dementia/ care are available at: Youtube channel of Dementia Care Notes
- Malayalam - A dementia caregiver manual in Malayalam, first edition, is available courtesy Dr. Shaji : Click here to download. (caution: this is only a general guideline and does not substitute professional advice which should be obtained from the doctor who examines the patient with dementia)
- Punjabi - Several booklets on dementia from Alzheimer's Society (UK) (topics include understanding memory loss, diagnosis and assessment, communicating, dealing with aggressive behaviour, handling legal and financial aspects). Punjabi information booklet from Scotland: Dementia.
- Tamil - An explanation of dementia from Vision Age, Chennai. Also available in Tamil: Several booklets on dementia from Alzheimer's Society (UK) (topics include understanding memory loss, diagnosis and assessment, communicating, dealing with aggressive behaviour, handling legal and financial aspects). Several booklets from Alzheimer's Australia in Tamil (topics include what is dementia, diagnosing, early planning, communication, taking a break, changed behaviours). Some documents on dementia and its assessment and possible activities etc. are available (may need special font installed): from Lanka Alzheimer's Foundation. You can also call/ email Vision Age for availability of printed booklets on dementia/ care in Tamil. A book written by DR.V.S.Natarajan (136 pages) is available: contact Dr.V.S.Natarajan, Adiparasakthi Clinic, A book written by DR.V.S.Natarajan (136 pages) is available: contact Dr.V.S.Natarajan, Adiparasakthi Clinic, Chennai, Ph: 044 -26412030, 044 – 26267282, email: firstname.lastname@example.org .
- Telugu - Documents from ARDSI Hyderabad Deccan chapter: Help for caregivers, What is dementia, Information on dementia and dementia events. Also, call/ email ARDSI Hyderabad Deccan Chapter for availability of printed booklets on dementia/ care in Telugu.
- Urdu - "What is dementia" from ARDSI Hyderabad deccan chapter, "Yeh Alzheimer's Hai Kya" from Alzheimer's Pakistan, Several booklets on dementia from Alzheimer's Society (UK) (topics include understanding memory loss, diagnosis and assessment, communicating, dealing with aggressive behaviour, handling legal and financial aspects). Urdu information booklet from Scotland: Dementia. Also, call/ email ARDSI Hyderabad Deccan Chapter for availability of printed booklets on dementia/ care in Urdu.
Also see our video resources page for links to videos in Indian languages.
Disclaimer: The resources/ links provided here are intended for information and convenience, and are not in any way intended to be an endorsement for the resource. Also, facilities offered keep changing, so please contact the organisations to get up-to-date information.
[This page was last updated in July, 2014]